I sat in my car for 10 minutes before walking into work today.
Sometimes I have no idea what I’m doing.
“Should I be here right now or should I be home? Should I be at a clinic getting treatment? Should I be doing something beneficial for my health?”
I don’t know how to gauge if what I’m doing is making an impact. I have a blood test this week to see where my levels stand, but you can’t change your cancer strategy every month regardless of blood tests.
Here’s what I’m trying to do every month:
Super Strength Coriolus (Turkey Tail Mushroom), 600mg, 5x day
Beta Glucan: 250mg, 2x day
Melatonin. 20mg. 1x day
Turmeric/Circumin with Meriva. 500mg, 6x day
EGCg (Green Tea Extract), 200mg, 6x day
Grape Seed Extract. 100mg, 6x day
European Milk thistle. 750mg, 4x day.
Resveratrol Acai & CoQ10. 400mg, 2x day
Fish Oil. 2 tablespoons, 1x day
Boswellia. 500mg, 2x day
Vitamin D3 with K2. 1,000 IU spray, 6x day
Zinc. 22mg, 2x day
B-Complex. 1 capsules, 2x day.
Klaire Labs Probiotic. 1 capsule, 1x day
Metatrol Pro (Fermented Wheat Germ Extract), 2 capsules, 1x day
Baseline Nutritional’s KGP Kidney Flush. 4 droppers, 2x day
Baseline Nutritional’s Liver Lincture, 4 droppers, 2x day
Mistletoe 1x day, every 2 days
IV Vitamin C. 1x week
IV Alpha Lipoic Acid. 1x week
Low-Dose Naltrexone. 1 pill at night
CBD Oil. 1 capsule at night.
Far Infared Sauna. 1x week
Acupuncture. 1x week
Other Things I want to start:
Black Seed Oil
Liposomal Vitamin C
Copper Chelation Therapy
I’m doing about half of this list right now because when you’re at the stage of disease that I’m at, conventional treatment is palliative, so I’m opting not to do it. This makes the financial strain on well researched alternatives/integrative options much higher. Palliative can still be considered “curable” but the numbers aren’t good.
I’ve been parking on the top of the parking deck for the past couple weeks because jogging up those 9 flights of stairs after work is a good way for me to get the heart rate going. Exercise and I are hard to find together in the same room. By the time I’m home from work and done with dinner and bedtime, I’m exhausted. Rebounding on the trampoline is the only thing I have time to fit in and it’s hard to find the energy. I’ve been trying to find energy to exercise because all this new research shows it increases survival in colon and breast cancer especially.
I spend so much of my day researching. Immunotherapy is something that’s been gaining ground in colon cancer treatment trials. Keytruda and Opdivo are showing to help patients survival rate. I ended up calling a hospital in Boston about various trials of these drugs only to find out using Immunotherapy on an Auto-Immune compromised patient is bad news. Immunotherapy takes the brakes off the immune system and has it attack cancer in ways it ignored before. The problem with auto-immune compromised patients is the original disease could be worsened. There is some research that says you can cross the streams, but I’m currently still afraid to wake my Crohn’s Disease (if that’s what I had) back up, as I don’t have a large intestine anymore and would quite literally die if it took over my small intestine. Since surgery, I’ve had no symptoms of IBD, so it may have been Ulcerative Colitis all along. I hesitate to find out.
And then you stumble across real world, non-pharmaceutical driven stories that show Opdivo only gives a patient on average 3.2 more months to live.
Sometimes I find it hard to find hope. I’ve been struggling with this a lot lately. Last year at this time nothing could get me down. I was headed into surgery staring eleven in the face and embracing the uncertainty. Today, eleven seems like such small hope.
I Have This Hope.
As I sat in the car, a song that defines me so closely right now came on the radio.
Whatever happens… I’m not afraid of cancer.
But I do at times fear not being able to heal/treat cancer, both financially and statistically.
That list above is a financial burden for us right now. Some of you may not know this, but Heather is working four jobs right now to try to pay for treatment (plus trying to keep herself and the kids healthy and happy) and it still isn’t enough. We are no longer even entertaining the idea of saving for college or setting us up for retirement at this time. How can we? We are focused on trying to make memories/vacations with our kids though, as you just never know how long you have left to do that. Obviously, that’s going to be hard to do too because of how much well-researched alternative treatment costs.
Supplements – $150-$200/month
IV Vitamin C – $395 for 3 infusions
IV Alpha Lipoic Acid – $295 for 3 infusions
Mistletoe – $313/month for 16 vials/injections
Metatrol Pro – $96/month
Acupuncture – $55 visit (2-4 times a month, but I’ve only gone once)
Infrared Sauna – $30 visit (2-4 times a month, but I haven’t been able to go yet)
Copper Chelation – $150/month (haven’t started yet)
As you can see, this isn’t sustainable. Especially for the 3-6-months I wanted to dedicate to this strategy.
I contacted a few cancer organizations that have helped me financially in the past, but because I’m doing non-conventional therapy, I’m not eligible for help. I explained that I started out conventional and had to stop, but it doesn’t matter. They can only help patients going through conventional therapy. And it makes sense… there’s so much bad research out there. The last thing they want to promote is some clinic in another country that hurts and scams desperate cancer patients.
Asking for Help Again
I have a very hard time asking for help. I just like to solve things myself. Unlucky for me, my wife is the same way. But here we are, stuck between rocks and hard places. Two years ago we had a bowling fundraiser and now we are asking people to come to another one. I feel bad asking, but I don’t know what else to do. Then I’m reminded of an article I read about how people want to be told how they can help.
Here are the details: RSVP using this facebook event page.
Friday, June 30 at 6:30 PM – 9:30 PM
50721 Van Dyke Ave, Shelby Township, Michigan 48317
Silent Auction / Bake Sale Sign Up Sheet
There’s also a silent auction sign up page set up at this link. If you want to donate an item, please do it here. This will be happening during the bowling fundraiser like last time.
Upcoming Charity Hockey Game
The details are still being worked out, and I likely won’t be skating, but I’d love to see people come out. In the event I am skating, you can all watch me try not to be terrible.
Go Fund Me Page
A friend of ours set up a GoFundMe page.
I finally got out of my car and headed into work. I do love being able to work while healing cancer because there are so many people who can’t. I also don’t know if there will come a day when I can’t anymore. I enjoy seeing my work friends and spending a few hours away from constant reminders that I’m in the eleventh percentile.
One day at a time.